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　　三九養(yǎng)生堂記者 鄧肯·蓋伊 報(bào)道

精彩|　　近??(jin)日??(ri)??，由??(you)中??(zhong)國(guó)??(guo)罕??(han)見(jiàn)??(jian)病?(bing)聯(lián)??(lian)盟??(meng)、中??(zhong)國(guó)??(guo)紅??(hong)十?(shi)字??(zi)基??(ji)金??(jin)會(huì)??(hui)、全??(quan)國(guó)??(guo)罕??(han)見(jiàn)??(jian)病??(bing)診??(zhen)療??(liao)協(xié)??(xie)作??(zuo)網(wǎng)??(wang)辦??(ban)公??(gong)室?(shi)等??(deng)共??(gong)同??(tong)主??(zhu)辦??(ban)的??(de)“2023年??(nian)中??(zhong)國(guó)??(guo)罕??(han)見(jiàn)??(jian)病??(bing)大??(da)會(huì)??(hui)”在??(zai)北??(bei)京??(jing)開(kāi)??(kai)幕??(mu)??。??來(lái)??(lai)自??(zi)全??(quan)國(guó)??(guo)罕??(han)見(jiàn)??(jian)病??(bing)政??(zheng)策??(ce)制??(zhi)定??(ding)、臨??(lin)床??(chuang)診??(zhen)療??(liao)、藥??(yao)物??(wu)研??(yan)發(fā)??(fa)、藥??(yao)品??(pin)保??(bao)障??(zhang)等??(deng)的??(de)數(shù)??(shu)萬(wàn)??(wan)名??(ming)同?(tong)道??(dao)和??(he)罕??(han)見(jiàn)??(jian)病??(bing)患?(huan)者??(zhe)在??(zai)線?(xian)上??(shang)線??(xian)下??(xia)參??(can)與??(yu)了??(le)會(huì)??(hui)議??(yi)???！　〗??(jiao)雅??(ya)輝?(hui)表??(biao)示??(shi)??，未??(wei)來(lái)??(lai)將??(jiang)結(jié)??(jie)合?(he)第??(di)二??(er)批??(pi)罕??(han)見(jiàn)??(jian)病??(bing)目??(mu)錄??(lu)進(jìn)??(jin)一??(yi)步??(bu)提??(ti)高??(gao)醫(yī)?(yi)務(wù)??(wu)人??(ren)員??(yuan)對(duì)??(dui)罕??(han)見(jiàn)??(jian)病??(bing)的??(de)辨??(bian)別??(bie)診??(zhen)治??(zhi)能??(neng)力??(li)；要??(yao)強(qiáng)??(qiang)化??(hua)醫(yī)??(yi)療??(liao)機(jī)??(ji)構(gòu)??(gou)間??(jian)的?(de)協(xié)??(xie)同??(tong)配??(pei)合??(he)??，發(fā)??(fa)揮??(hui)牽??(qian)頭??(tou)醫(yī)??(yi)院??(yuan)的??(de)輻??(fu)射?(she)帶??(dai)動(dòng)??(dong)作??(zuo)用??(yong)??，做??(zuo)好??(hao)罕??(han)見(jiàn)??(jian)病?(bing)的??(de)管?(guan)理??(li)和??(he)病??(bing)例?(li)登??(deng)記??(ji)??，調(diào)??(tiao)整??(zheng)完??(wan)善??(shan)罕??(han)見(jiàn)??(jian)病??(bing)診??(zhen)療??(liao)協(xié)??(xie)作??(zuo)網(wǎng)??(wang)；同??(tong)時(shí)??(shi)??，持?(chi)續(xù)??(xu)提??(ti)升??(sheng)罕??(han)見(jiàn)??(jian)病??(bing)患??(huan)者??(zhe)就?(jiu)醫(yī)??(yi)體??(ti)驗(yàn)??(yan)??，以??(yi)患??(huan)者??(zhe)為?(wei)中??(zhong)心??(xin)??，打??(da)造??(zao)有??(you)溫??(wen)度??(du)的??(de)醫(yī)??(yi)療??(liao)服?(fu)務(wù)??(wu)??。??

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