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　　三九養(yǎng)生堂記者 鄧肯·蓋伊 報(bào)道

精彩|　　主??(zhu)論??(lun)壇??(tan)現(xiàn)??(xian)場(chǎng)??(chang)正??(zheng)式??(shi)發(fā)??(fa)布?(bu)了??(le)由??(you)中??(zhong)國(guó)??(guo)罕??(han)見(jiàn)??(jian)病??(bing)聯(lián)??(lian)盟??(meng)牽??(qian)頭??(tou)制??(zhi)定??(ding)的??(de)《中??(zhong)國(guó)??(guo)罕??(han)見(jiàn)??(jian)病??(bing)行??(xing)動(dòng)??(dong)倡??(chang)議??(yi)2030》??。??該??(gai)倡??(chang)議??(yi)是??(shi)社??(she)會(huì)??(hui)各??(ge)界??(jie)協(xié)??(xie)同??(tong)推?(tui)進(jìn)??(jin)中?(zhong)國(guó)?(guo)特??(te)色??(se)罕??(han)見(jiàn)??(jian)病??(bing)防??(fang)治??(zhi)保??(bao)障??(zhang)方??(fang)案?(an)的??(de)行??(xing)動(dòng)??(dong)建??(jian)議??(yi)??。倡??(chang)議??(yi)提??(ti)出??(chu)到??(dao)2030年??(nian)??，要?(yao)進(jìn)?(jin)一??(yi)步??(bu)提??(ti)升??(sheng)我??(wo)國(guó)??(guo)罕??(han)見(jiàn)??(jian)病??(bing)早??(zao)發(fā)??(fa)現(xiàn)??(xian)、早??(zao)診??(zhen)斷??(duan)、早??(zao)治??(zhi)療?(liao)、有??(you)藥??(yao)用??(yong)、可??(ke)管??(guan)理??(li)、能??(neng)負(fù)??(fu)擔(dān)??(dan)的??(de)水??(shui)平??(ping)??，涵??(han)蓋??(gai)社??(she)會(huì)??(hui)關(guān)??(guan)注??(zhu)、防??(fang)控??(kong)篩??(shai)查??(zha)、診?(zhen)療??(liao)服??(fu)務(wù)?(wu)、患??(huan)者??(zhe)康??(kang)復(fù)??(fu)和??(he)政??(zheng)策??(ce)保?(bao)障??(zhang)五??(wu)個(gè)??(ge)方??(fang)面??(mian)???！　?guó)??(guo)家??(jia)衛(wèi)??(wei)生??(sheng)健??(jian)康??(kang)委??(wei)醫(yī)??(yi)政??(zheng)司??(si)司?(si)長(zhǎng)??(chang)焦?(jiao)雅?(ya)輝??(hui)在?(zai)開(kāi)??(kai)幕??(mu)式??(shi)中??(zhong)介??(jie)紹??(shao)??，國(guó)??(guo)家?(jia)衛(wèi)??(wei)生??(sheng)健??(jian)康??(kang)委??(wei)深??(shen)入??(ru)貫??(guan)徹??(che)黨??(dang)中??(zhong)央??(yang)國(guó)??(guo)務(wù)??(wu)院??(yuan)決??(jue)策??(ce)部??(bu)署??(shu)??，圍??(wei)繞??(rao)人?(ren)民??(min)群?(qun)眾??(zhong)看?(kan)病??(bing)就??(jiu)醫(yī)??(yi)“急??(ji)難?(nan)愁??(chou)盼??(pan)”的??(de)問(wèn)??(wen)題??(ti)開(kāi)??(kai)展??(zhan)一??(yi)系??(xi)列??(lie)工??(gong)作??(zuo)??，推??(tui)動(dòng)??(dong)提??(ti)升??(sheng)罕??(han)見(jiàn)?(jian)病??(bing)的??(de)管?(guan)理??(li)水??(shui)平??(ping)??。?2023年??(nian)9月??(yue)??，國(guó)??(guo)家??(jia)衛(wèi)??(wei)生??(sheng)健??(jian)康??(kang)委??(wei)聯(lián)??(lian)合?(he)6部?(bu)委??(wei)發(fā)??(fa)布??(bu)《第?(di)二??(er)批??(pi)罕??(han)見(jiàn)??(jian)病??(bing)目??(mu)錄??(lu)》??，罕??(han)見(jiàn)??(jian)病??(bing)目??(mu)錄??(lu)病??(bing)種??(zhong)增??(zeng)加??(jia)至??(zhi)207種??(zhong)；通??(tong)過(guò)??(guo)建??(jian)立?(li)診??(zhen)療??(liao)協(xié)??(xie)作??(zuo)網(wǎng)??(wang)、制??(zhi)定??(ding)診??(zhen)療??(liao)規(guī)??(gui)范??(fan)、開(kāi)??(kai)展??(zhan)醫(yī)??(yi)務(wù)??(wu)人??(ren)員??(yuan)培??(pei)訓(xùn)??(xun)、推??(tui)廣??(guang)多?(duo)學(xué)??(xue)科??(ke)會(huì)??(hui)診??(zhen)模??(mo)式??(shi)、建?(jian)立??(li)罕??(han)見(jiàn)??(jian)病??(bing)質(zhì)??(zhi)控??(kong)中??(zhong)心??(xin)、規(guī)??(gui)劃??(hua)國(guó)??(guo)家??(jia)罕??(han)見(jiàn)??(jian)病??(bing)醫(yī)??(yi)學(xué)?(xue)中??(zhong)心??(xin)并??(bing)制??(zhi)定??(ding)設(shè)??(she)置??(zhi)標(biāo)??(biao)準(zhǔn)??(zhun)??，全??(quan)面??(mian)健??(jian)全??(quan)罕??(han)見(jiàn)??(jian)病?(bing)診??(zhen)療??(liao)體??(ti)系??(xi)并??(bing)提??(ti)升??(sheng)救??(jiu)治?(zhi)能??(neng)力??(li)；截??(jie)至??(zhi)2023年??(nian)9月??(yue)??，我??(wo)國(guó)??(guo)已??(yi)累??(lei)計(jì)??(ji)登?(deng)記??(ji)約??(yue)78萬(wàn)??(wan)例??(li)罕??(han)見(jiàn)??(jian)病??(bing)病?(bing)例??(li)??，為??(wei)完??(wan)善??(shan)罕??(han)見(jiàn)??(jian)病??(bing)管??(guan)理?(li)制??(zhi)度??(du)提?(ti)供?(gong)了??(le)科?(ke)學(xué)??(xue)依??(yi)據(jù)??(ju)??。

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