三九養(yǎng)生堂記者 鄧肯·蓋伊 報道
精彩| 近??(jin)日??(ri)??，由??(you)中??(zhong)國??(guo)罕??(han)見??(jian)病??(bing)聯(lián)??(lian)盟?(meng)、中??(zhong)國??(guo)紅??(hong)十??(shi)字??(zi)基??(ji)金??(jin)會??(hui)、全??(quan)國??(guo)罕??(han)見??(jian)病??(bing)診??(zhen)療??(liao)協(xié)??(xie)作??(zuo)網??(wang)辦??(ban)公??(gong)室??(shi)等??(deng)共??(gong)同??(tong)主??(zhu)辦??(ban)的??(de)“2023年??(nian)中??(zhong)國?(guo)罕??(han)見??(jian)病??(bing)大??(da)會??(hui)”在??(zai)北??(bei)京??(jing)開??(kai)幕??(mu)??。??來??(lai)自??(zi)全?(quan)國??(guo)罕?(han)見?(jian)病??(bing)政??(zheng)策?(ce)制?(zhi)定??(ding)、臨??(lin)床??(chuang)診?(zhen)療??(liao)、藥??(yao)物??(wu)研??(yan)發(fā)?(fa)、藥??(yao)品??(pin)保??(bao)障??(zhang)等??(deng)的??(de)數??(shu)萬??(wan)名??(ming)同??(tong)道??(dao)和??(he)罕?(han)見??(jian)病??(bing)患??(huan)者?(zhe)在??(zai)線??(xian)上??(shang)線??(xian)下??(xia)參??(can)與??(yu)了??(le)會??(hui)議??(yi)??。 焦??(jiao)雅??(ya)輝??(hui)表?(biao)示??(shi)??，未??(wei)來??(lai)將??(jiang)結??(jie)合??(he)第??(di)二??(er)批??(pi)罕??(han)見??(jian)病??(bing)目??(mu)錄??(lu)進??(jin)一??(yi)步??(bu)提??(ti)高??(gao)醫(yī)??(yi)務??(wu)人??(ren)員??(yuan)對??(dui)罕??(han)見??(jian)病??(bing)的?(de)辨??(bian)別??(bie)診??(zhen)治??(zhi)能??(neng)力??(li)；要??(yao)強?(qiang)化??(hua)醫(yī)??(yi)療??(liao)機??(ji)構??(gou)間??(jian)的??(de)協(xié)??(xie)同??(tong)配??(pei)合?(he)??，發(fā)??(fa)揮?(hui)牽??(qian)頭??(tou)醫(yī)??(yi)院?(yuan)的??(de)輻??(fu)射??(she)帶??(dai)動??(dong)作??(zuo)用??(yong)??，做??(zuo)好?(hao)罕??(han)見?(jian)病??(bing)的??(de)管??(guan)理?(li)和??(he)病??(bing)例??(li)登??(deng)記??(ji)??，調??(tiao)整??(zheng)完??(wan)善??(shan)罕??(han)見??(jian)病??(bing)診??(zhen)療??(liao)協(xié)??(xie)作??(zuo)網??(wang)；同??(tong)時??(shi)??，持??(chi)續(xù)??(xu)提??(ti)升??(sheng)罕??(han)見??(jian)病??(bing)患??(huan)者??(zhe)就??(jiu)醫(yī)?(yi)體??(ti)驗??(yan)??，以??(yi)患??(huan)者??(zhe)為??(wei)中??(zhong)心??(xin)??，打??(da)造??(zao)有??(you)溫??(wen)度??(du)的??(de)醫(yī)?(yi)療??(liao)服??(fu)務??(wu)?。??
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