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　　三九養(yǎng)生堂記者 鄧肯·蓋伊 報道

精彩|　　主??(zhu)論??(lun)壇??(tan)現??(xian)場??(chang)正??(zheng)式??(shi)發(fā)??(fa)布?(bu)了??(le)由??(you)中??(zhong)國?(guo)罕?(han)見?(jian)病??(bing)聯??(lian)盟??(meng)牽??(qian)頭??(tou)制??(zhi)定??(ding)的??(de)《中??(zhong)國??(guo)罕??(han)見?(jian)病??(bing)行??(xing)動??(dong)倡??(chang)議?(yi)2030》??。??該??(gai)倡?(chang)議??(yi)是??(shi)社??(she)會??(hui)各??(ge)界??(jie)協??(xie)同??(tong)推?(tui)進??(jin)中??(zhong)國?(guo)特??(te)色??(se)罕?(han)見??(jian)病?(bing)防??(fang)治??(zhi)保??(bao)障??(zhang)方?(fang)案??(an)的??(de)行??(xing)動??(dong)建??(jian)議??(yi)??。倡??(chang)議??(yi)提?(ti)出??(chu)到??(dao)2030年??(nian)?，要??(yao)進??(jin)一??(yi)步??(bu)提??(ti)升??(sheng)我??(wo)國??(guo)罕??(han)見??(jian)病??(bing)早??(zao)發(fā)?(fa)現??(xian)、早??(zao)診?(zhen)斷??(duan)、早??(zao)治?(zhi)療??(liao)、有??(you)藥??(yao)用?(yong)、可?(ke)管??(guan)理??(li)、能??(neng)負??(fu)擔??(dan)的?(de)水??(shui)平??(ping)?，涵??(han)蓋??(gai)社??(she)會??(hui)關??(guan)注??(zhu)、防??(fang)控??(kong)篩??(shai)查??(zha)、診??(zhen)療??(liao)服??(fu)務??(wu)、患??(huan)者??(zhe)康?(kang)復??(fu)和??(he)政??(zheng)策??(ce)保??(bao)障??(zhang)五??(wu)個??(ge)方??(fang)面??(mian)???！　〗??(jiao)雅??(ya)輝??(hui)表??(biao)示??(shi)??，未??(wei)來??(lai)將??(jiang)結??(jie)合??(he)第??(di)二??(er)批??(pi)罕??(han)見??(jian)病??(bing)目??(mu)錄?(lu)進??(jin)一??(yi)步??(bu)提??(ti)高??(gao)醫(yī)??(yi)務??(wu)人??(ren)員??(yuan)對??(dui)罕??(han)見??(jian)病??(bing)的??(de)辨??(bian)別??(bie)診??(zhen)治??(zhi)能??(neng)力??(li)；要??(yao)強??(qiang)化??(hua)醫(yī)??(yi)療??(liao)機??(ji)構??(gou)間??(jian)的??(de)協??(xie)同??(tong)配?(pei)合??(he)??，發(fā)??(fa)揮??(hui)牽?(qian)頭??(tou)醫(yī)??(yi)院??(yuan)的?(de)輻??(fu)射??(she)帶??(dai)動??(dong)作??(zuo)用??(yong)??，做??(zuo)好??(hao)罕??(han)見??(jian)病??(bing)的??(de)管?(guan)理??(li)和??(he)病??(bing)例??(li)登??(deng)記??(ji)??，調??(tiao)整??(zheng)完??(wan)善??(shan)罕??(han)見??(jian)病??(bing)診??(zhen)療??(liao)協??(xie)作??(zuo)網??(wang)；同??(tong)時??(shi)??，持??(chi)續(xù)??(xu)提??(ti)升??(sheng)罕??(han)見??(jian)病??(bing)患?(huan)者??(zhe)就??(jiu)醫(yī)??(yi)體??(ti)驗??(yan)??，以??(yi)患??(huan)者??(zhe)為??(wei)中?(zhong)心?(xin)??，打?(da)造??(zao)有?(you)溫??(wen)度??(du)的??(de)醫(yī)??(yi)療??(liao)服??(fu)務??(wu)??。??

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